Idelle Kursman

Austin, Minnesota: An Autism-Friendly Town

 

The Famous Hormel Historic Home

In my novel True Mercy, Bruce often had to worry about his son Adam’s behavior in social settings. But if the story took place in Austin, Minnesota, he would have had much less to worry about. That’s because Austin is an autism-friendly town. Ten years ago, the community used their resources to educate local business owners about autism and train them to be aware of these customers’ needs. The town even has a community autism resource specialist. Therefore, Austin’s residents are probably more aware than most about the signs of autism that my story’s character Adam displayed: intense fixation on specific topics, unusual body movements like hands flapping, echolalia (word repetition), and meltdowns caused by feeling overwhelmed.

So how did the small town of Austin make itself autism-friendly? Just go in the Hormel Historic Home, a nonprofit museum dedicated to all things Spam, the canned meat that has been produced by Hormel Foods there for 81 years. Mary Barinka works there. She once worked as a Hormel marketing executive and is now the town’s autism resource specialist as well as a museum employee. Barinka has a sixteen-year-old daughter with autism. Along with working at the museum, she handles questions and requests from parents that can range from how to give a presentation to new business owners and their employees on becoming autism-friendly, where to find a good speech therapist, and how to help a local community college launch a special autism program.

You may wonder what business owners must do to make their establishments autism-friendly. Often individuals with autism react negatively to overstimulation, so these changes can include dimming the store’s lights, lowering the music volume, and training employees to speak slowly and in short phrases, and to be prepared to have more patience than usual.

The program began when retired Hormel executive and family friend Gary Ray asked Barinka if her then six-year-old daughter was able to participate in summer camp. Barinka told him she and her husband would like her to attend camp but it was not possible because they would need the camp to understand their daughter’s special needs and they would have to hire a helper. Ray and his wife then offered a donation for Barinka to start a camp. She jumped on it. The Ray’s have since donated over $100,000 to fund more programs such as a monthly respite night with children’s activities to give parents and caregivers a break, a peer program at the high school where student volunteers to spend time with another high schooler with autism one-on-one, day camps, and of course, the museum.

Hearing about the town’s programs, new families have moved in. Barinka also gets calls for advice from other towns who would like to set up their own autism-friendly programs.

Perhaps someday I will be able to visit Austin, Minnesota. I am sure my fictional character Adam and real-life individuals with autism would thrive in this town.

Information for this post came from The Washington Post article “The town that gave the world Spam is proud to be ‘autism-friendly’ by Amy Ellis Nutt.

True Mercy can be purchased on Amazon, IngramSpark, and Smashwords.

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Pachinko: A Potential Modern Masterpiece Falls Short

 

 

When I began reading Pachinko by Min Jin Lee, I initially thought this was the best book I have read so far this year. I had planned on writing a stellar book review. A National Book Award finalist, it tells the story of an impoverished sixteen-year-old girl named Sunja in 1930’s Korea. Sunja has a relationship with Hansu, a wealthy, powerful, older businessman who frequents her region. Sunja naively believes Hansu will marry her. Only when she gets pregnant and reveals she is carrying his child does she find out he is a married man who lives in Japan. Hansu, who has three daughters with his wife, wants Sunja to be his wife when he travels to Korea.  Knowing this is not honorable, Sunja rejects his offer for a much easier life and stays with her mother while they struggle to make ends meet. Soon, she meets Isak, a Korean missionary on his way to Japan to help build a church. Isak is willing to marry her and does not even question who fathered her child. He selflessly wants to give the unborn child a name. They move to Japan where Sunja gives birth to a son.

Unlike the first half of the book where the reader encounters characters living lives of quiet nobility, the second half is filled with vengeful and sexually depraved characters who wreak havoc. The writing is polished and author Lee offers beautiful imagery in her descriptions (“The sea was bluer than she had remembered, and the long, thin clouds seemed paler—everything seemed more vibrant with him here.”). But unfortunately, the characters go from Biblical in majesty to wreaking sensationalized tragedies. Lee spends too much time on the challenges of minor characters and transforms a few from kind and friendly to malicious in a single scene. The emphasis becomes Japanese racism of Koreans, depriving them of good careers and citizenship, despite their families having lived in Japan for generations. Lee never clearly explains what pachinko is, but I gather it is a gambling casino, one of the few jobs Koreans can work and make a decent living in Japan. By the end, the beauty of the story and its characters are lost and all the reader is left to contemplate is Japanese bigotry and foreign powers taking control of Korea itself, splitting the nation in half. Koreans in Japan no longer have their homes in Korea and those from the North who return end up starving to death. Thus, most have no choice but to endure the ongoing discrimination in Japan. An unsatisfying read after a remarkable beginning.

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Shaquem Griffin and NFL: Story of Inspiration

I’ve been wanting to write a post about an inspirational person. This past weekend, I saw Shaquem Griffen and his twin brothe Shaquill on TV during the NFL draft and realized I had my post.

Shaquem Griffen was born with a pre-birth condition known as Amniotic Band Syndrome, which occurs when a limb in the fetus becomes entrapped in amniotic bands while still in the womb. In Griffin’s case, a band wrapped around his left hand had cut off circulation. Pain wracked his hand during his first few years of life, and one day his mother found him in the kitchen trying to cut off his hand with a knife. The next day his family took him for surgery to amputate that hand.

Shaquem said he had to work harder than everyone else to prove he was just as capable. He and his twin brother Shaquill played football growing up, and both earned scholarships to the University of Central Florida. However, during their first years of college, Shaquill played on the UCF football team while Shaquem got redshirted for the first year, playing second string, and then getting bumped down to third string. Then in the third season, his luck changed. The coach brought him back to play for the team.

And play he did. For the next two seasons the team was the undefeated, national champions. In 2016, Shaquem was named the American Athletic Conference Defense Player of the Year.

Now Shaquem has been drafted to play with the Seattle Seakhawks, reuniting him with Shaquill, who was drafted by Seattle last year.

Shaquem has a message he wishes to impart based on his life experience:

I’ve had people doubt me my whole life, and I know that there are a lot of kids out there with various deformities or birth defects or whatever labels people want to put on them, and they’re going to be doubted, too. And I’m convinced that God has put me on this earth for a reason, and that reason is to show people that it doesn’t matter what anybody else says, because people are going to doubt you regardless. That’s a fact of life for everybody, but especially for those with birth defects or other so-called disabilities.

The important thing is that you don’t doubt yourself.

In addition, Shaquem’s father taught him never to quit with a motto he always keeps in mind: “Nothing comes easy.”

Shaquem Griffen drafted by the Seahawks

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